Heterotaxy Syndrome —a rare, life-threatening, congenital condition in which chest and abdominal organs are misplaced, malformed, or absent, commonly affecting the heart, spleen, liver, and intestines — involves serious, often fatal, complex congenital heart defects and unusual symmetry in organ placement.
Treatment for heterotaxy often includes surgical repair of heart and other organs for children and infants, which often requires parents to travel to and stay for extended periods of time at a hospital that offers these life-saving procedures. The travel, lodging, and other expenses related to treatment are almost never covered under health insurance, and they present distinct challenges for families affected by this syndrome.
This is where Malachi’s House of Hope has stepped in to offer hope and fill the gap.
Follow Malachi’s House of Hope on Facebook.
Founders Chijioke “CJ” and April Nwabuike of Brighton created this non-profit organization out of their own personal, heart-wrenching experience. Their son Malachi was discovered to have heterotaxy before he was born. As so many others before them, CJ and April had to rearrange their lives to help their son survive…