The Brief
- A mother from Belleville hopes to raise awareness about Lafora body disease, an ultra-rare disease her son is battling that has already claimed another one of her children.
- Gigi, 16, is in the late stages of the genetic neurological condition.
- His mother is working to meet his needs and make his final days comfortable while living with the weight of knowing he will likely die.
BELLEVILLE, Mich. (FOX 2) – As Rare Diease Day approaches, a Belleville mother is hoping to raise awareness about a disease two of her sons have battled.
Gigi, 16, is in the late stages of Lafora body disease. His family learned that he had the rare genetic condition just days after his brother, Hiatham, died from Lafora.
The backstory:…