Atlanta native Beka Ramsey is 1 in 10,000 . Those are the odds someone will be diagnosed with the rare, often life threatening disease called heterotaxy syndrome .
Identified in utero, she had a hole in her heart and a rare defect that caused two of her major arteries to connect to the same ventricle. The syndrome accounts for only 3% of congenital heart disease cases , but Ramsey was one of them. It was a serious medical problem in need of a swift remedy.
The prognosis for the syndrome is often dire, and many newborns don’t survive beyond their first year. Ramsey, however, is going strong at 29…