BOCA RATON, Fla. — For most parents, a medical diagnosis can take minutes. But for one Florida family, it took years.
In 2019, Jordan Avi Ogman was diagnosed with TECPR2, a fatal neurodegenerative genetic disease. His family says it took nearly four years to get that answer.
“The worst thing was four years of not knowing,” said his father, David Ogman. “And us going to every doctor in South Florida trying to figure this out. They look at Jordan. They thumb through the physician’s desk reference. They say everything’s fine. Take him home. Every kid develops at their own pace.”…