ST. PETERSBURG, Fla. — The disease ALS is often described as a thief — stealing a person’s ability to move, speak and eventually breathe, while their mind stays fully aware. It’s also one of the most expensive diseases to manage, requiring specialized equipment, around-the-clock care and constant support.
For Rob Pope and his wife, Tammy, the toll has been both emotional and financial.
Rob was in his early 40s and in good health when he started losing his balance and slurring his speech. Within a few years, he was diagnosed with a slow-progressing form of ALS, or amyotrophic lateral sclerosis — the same condition once known as Lou Gehrig’s disease…