Florida disability care crisis: Families face hidden costs and years-long delays: ‘Nobody will help us’

The Brief

  • Thousands of Florida children with severe behavioral and physical disabilities are either stuck on state waitlists or fail to meet qualification criteria for in-home care.
  • Caregivers managing these complex needs report immense physical, medical and financial strain to keep their children out of state institutions.
  • As of early 2026, more than 16,000 eligible Floridians are currently awaiting services, prompting scrutiny into unspent state funds designated for waitlist reduction.

FORT MYERS, Fla. Florida’s Agency for Persons with Disabilities (APD) offers home-based services designed to keep individuals with disabilities out of state facilities, an approach intended to save taxpayer money associated with high institutionalization costs.

The backstory:

However, systemic challenges have created a two-tiered crisis.

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