Joyous day, but challenges ahead for Westfield family

Wesley Nelson, a 4-year-old Westfield resident who suffers from Hunter syndrome — a rare and terminal genetic disorder — was honored with a Make-A-Wish parade in Westfield Nov. 22 that included a helicopter visit and the gift of a golf cart painted like a school bus, one of Wesley’s favorite things.

“The day was incredible, definitely above and beyond what I had imagined,” said Wesley’s mother, Katarina. “I know that he is never going to get off of his school bus golf cart once he gets on it.”

The community support was appreciated by Brian and Katarina Nelson, Wesley’s parents, but it was bittersweet. The parade was planned before Indiana Medicaid benefits for Wesley were recently denied…

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