For any families that deal with a rare disease, finding answers can be a long and difficult process. The endless appointments, tests, and sleepless nights; all to find out there was little they could actually do. Well, a Tiffin biotechnology company is building a new resource that could give researchers another way to study these conditions and better understand the people affected by them.
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ORF Biologics, Inc. has launched its Rare Disease Program and Biorepository, an initiative designed to make biological specimens and related research information available for rare disease research. Yes, it sounds like a lot of scientific jargon, but the basic idea is fairly simple.
A biorepository is essentially a carefully managed collection of biological samples that researchers can use to study diseases. In this case, ORF Biologics says eligible people affected by rare diseases may voluntarily provide biological specimens for research. Depending on the specific research protocol and informed consent, those samples could include blood, blood-derived materials, and potentially other biological materials.
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