When Gwendolyn Clouse’s parents received a phone call that their daughter likely wouldn’t survive past her first birthday, their lives completely changed.
As a baby, Gwendolyn was diagnosed with peroxisomal biogenesis disorder – Zellweger spectrum disorder (PBD – ZSD), a rare disease that affects all major organs in the body. PBD – ZSD is a progressive disorder, meaning that symptoms become worse as one ages.
Gwendolyn has lost her eyesight and her hearing. She wears cochlear implants in order to help her hear sounds…