TAMPA, Fla. (WFLA) — Doctors at Johns Hopkins All Children’s Hospital said the condition Jasmine Ramirez suffered from is very, very rare.
At the age of 2, her left leg began to grow abnormally large.
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“It is in the top 10 of my career of almost 30 years of searching, but we haven’t given up, and we are going to figure it out, and then we are going to call it Jasmine’s gene,” said Dr. Jennifer Mayer, one of the physicians who has worked with Jasmine for years to deal with her condition.
Over the years, Jasmine had many different surgeries and been treated with a number of medications, but nothing seemed to work.
“Every time we’ve done surgery to try and make the leg smaller, removing tissue, either with liposuction or with open operations where we’ve removed abnormal skin or abnormal skin to make it smaller, six months,” said Dr. Alex Rottgers, her surgeon. “It was almost like we hadn’t done anything, and it had gotten larger.”…