Once fatal in infancy, Pompe Disease patients now surviving into adulthood, thanks to Duke research

DURHAM, N.C. — There’s renewed hope for people who once received a diagnosis that was considered a death sentence.

Thanks to groundbreaking research at Duke University decades ago, people are beating the odds so heavily stacked against them.

At just 6-months old, Haley Hayes was diagnosed with infantile-onset Pompe disease and went into congestive heart failure…

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