NEWBURGH, Ind. (WEHT) — A 16-year-old Newburgh boy is battling a rare life-altering disease.His family says time is running out for his health. The family says the insurance coverage they desperately need to afford medication has been denied several times. An announcement made by the insurance carrier, on Friday, could mean renewed hope.
16-year-old Donovan Scheessele should be worrying about high school friends and sports and instead is fighting a rare disease: Baló’s Concentric sclerosis. It’s a condition so rare some doctors go their entire careers without ever seeing it.
“…of all the Multiple Sclerosis cases in the world, less than 1% have this Baló’s situation,” says Daniel Scott, Donovan’s father…