OP teen bikes 150 miles to raise awareness, hope for rare genetic disorder

An Overland Park teen completed a 150-mile bike journey Sunday to raise awareness and hope for his rare genetic disorder.

Brian Luton/KSHB 41

Carson Hunt, 17, has Homocystinuria cblG (Cobalamin G), a rare metabolic disorder that impacts his ability to process amino acids.

The disease puts him at risk for seizures, permanent vision loss and even stroke. He’s also legally blind with some developmental delays.

Hunt is No. 28 of 51 known cblG cases in the world and has outlived most of the research done on this disorder.

Now, he has his sights set on exploring new treatments into adulthood.

Dana Hunt

“The pride looking at him; it warms my heart,” said Dana Hunt, Carson’s mother.

Brian Luton/KSHB 41

She’s been along for the ride since his birth.

“His disorder was not caught on the newborn screen, and we kept taking him back to the doctors … and they’re like, ‘Nothing’s wrong with him,’” Dana Hunt said.

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