Benefit walk honoring 12-year-old who died from VEDS complications

KANSAS CITY, Mo. — He may have looked like a performer thanks to his dancing skills on full display on TikTok, but 12-year-old Brennen Goody was all about sports.

“He aspired to be a professional soccer player or football player; he really liked Mahomes,” said his mother, Jackie Goody.

She described her eldest child as sweet, high energy, fun, and very empathetic.

“Anytime we drove by a homeless guy he’d want us to give him money, get him food, or let him come stay at our house,” she added.

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A bug bite landed him in the hospital a few years back. Doctors thought the bruising looked odd and referred him to hematology. When specialists there couldn’t figure it out, they sent the family to genetics. Testing there revealed a gene mutation and a diagnosis of Vascular Ehlers-Danlos Syndrome (VEDS). Because it’s so rare he wasn’t diagnosed until 2021 at the age of 10.

The disorder essentially makes one’s body fragile and susceptible to injury, making it easy for organs and blood vessels to rupture. That led to a lot of ER visits and stitches to his head.

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