Rare Disease Day Tucson serves as a platform for advocacy and awareness and allows families and caregivers to be connected to resources and find their community. The event will be taking place at the Children’s Museum on March 1.
According to the National Cancer Institute, there are about 7,000 rare diseases in the United States.
Cristal Rodriguez has three kids, all of whom have rare genetic differences. Her twins are three years old and are diagnosed with TANC2-related syndrome…