“It’s a really rare disease. It’s basically one in a million,” says Onyx Middleton’s neurologist Dr. Varun Kannan
Freshman year of college, 18-year-old Onyx Middleton was having headaches . The fashion major at Clark Atlanta University started missing class, and she wasn’t eating or sleeping. Her primary care physician said it was likely anxiety and stress.
“I did feel stressed,” Onyx Middleton, now 19, tells PEOPLE. “I felt like I had a weight on my shoulders.”
On February 9, 2024, her then-boyfriend dropped off Onyx at her parents’ home in Atlanta, about 30 minutes away from campus. Her mom says she wasn’t expecting Onyx, since she had been home the weekend before…