Falls Church family searching for donors after siblings diagnosed with rare medical disorders

The Brief

  • A Falls Church family is hoping to find help for their two young children diagnosed with a rare disease.
  • Lucca Thompson, 2, and Noelle Thompson, 4, both suffer from Chediak-Higashi Syndrome.
  • The children now need urgent, life-saving blood stem cell transplants.

FALLS CHURCH, Va. A Falls Church family just received two incredibly rare medical diagnoses, and are asking people across the DMV to step forward and help save their lives.

The backstory:

Lucca Thompson, 2, and Noelle Thompson, 4, were both diagnosed in early May with Chediak-Higashi Syndrome. It’s an exceptionally rare genetic disorder that can be fatal if it’s not properly treated. It’s so rare the NIH says there are fewer than 500 documented cases worldwide.

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