HAMBURG, N.Y. (WKBW) — Alyssa and Brad Casacci have been fighting for insurance to approve brain surgery for their 11-month-old son, Cameron.
The couple said that hours after Cam was born, he suffered a stroke on the left side of his brain, which progressed to seizures and epilepsy. In the last few months, Cam was hospitalized several times. Then, the couple found out about a drastic brain surgery that disconnects the left side of the brain from the right in hopes of stopping the seizures.
They found a surgeon with experience that they were comfortable with in Pittsburgh and were ready for surgery last month, but it was shut down. Cameron’s insurance is a Medicaid Managed care plan through Independent Health, and the surgery was denied because it was “out of network.” The couple appealed, and it was denied. In the denial, Independent Health notified the couple of a surgeon in Rochester, but the couple didn’t want someone with less experience to perform the surgery…