Every night, not long after the sun drops below the dusty horizon on the outskirts of Bakersfield, Jesus Alonso begins the ritual of safely putting his 8-year-old son, also named Jesus, to bed.
In the same home he grew up in, in the same bedroom where he slept throughout his own adolescence, the older Jesus goes to his child’s bedside and sets him at a 45-degree angle, so his head is elevated, to help him breathe, and always on his side — in case he throws up in his sleep. He puts a bucket beside the mattress for the same reason. A freshly cleaned and refilled humidifier infused with a liquid cough suppressant exhales camphor- and menthol-scented mist. Jesus aims an air purifier at his son’s bed, but not directly; the air is angled to blow onto him from off the wall so it works without hitting him too hard. Jesus developed this routine out of desperation. It’s the only measure — despite dozens of medications and doctor visits — that seems to work.
The child has had coughing fits for more than half of his young life. The spells always strike at night, usually during seasonal transitions. They can last 15 to 45 minutes and continue for days or weeks at a time. He usually coughs so much he vomits. Sometimes Jesus adds extra steps to the routine, like slathering VapoRub on his son’s chest or sleeping beside him to make sure he maintains that 45-degree angle throughout the night…