“Halo receives most of her nutrition through her feeding tube. This would be her pump. This is the bag that we put her formula into. And this tube connects to a little to something called a Mickey button. That it’s a port inside Halo’s stomach,” said Theresa Little, speaking with CBS 6 anchor Lara Bryn about her daughter, two-year-old Halo.
Halo isn’t like most toddlers. The little girl, from Albany, is suffering from a condition so rare, it’s part of a whole new classification of diseases called “ultra rare disease.” Now her mother is doing everything she can to understand what her daughter is dealing with and to raise awareness.
When Halo was really little, she seemed like a completely normal baby, but at around four months old, her mother noticed Halo wasn’t hitting the expected milestones…