Melrose resident advocates for rare kidney disease awareness and policy reform

Press release from the American Kidney Fund

MELROSE, Fla. – Melrose resident Sue Reale traveled to Washington, D.C., on September 11 as an Ambassador for the American Kidney Fund. Reale, who has autosomal dominant tubulointerstitial kidney disease (ADTKD), a genetic kidney disease, spoke to the staff of five legislators, including Congresswoman Kat Cammack, Senator Rick Scott, and Senator Ashley Moody.

Reale said, “I am passionate about spreading the word about rare kidney diseases, including ADTKD. We spoke to the fact that some ‘rare’ diseases might not be so rare once more people become aware of them or are diagnosed with the disease. Thus, it is more likely a drug will be developed and research conducted about the rare disease.”…

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