Rankin County family meets with FDA Commissioner over rare disease medication denial

RICHLAND, Miss. (WLBT) – A Rankin County family’s fight to get a drug approved takes them to Washington, D.C., where they had a sit-down with the FDA Commissioner.

After a peaceful demonstration with other families impacted by Barth Syndrome, they have hope for future access to a medication denied by the agency.

“We were there on a wing and a prayer, and we got it,” said Kristi Pena…

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