Dozens of trucks, motorcycles and even camels lined up Saturday to honor 3-year-old Tucker Langford, who is battling a rare genetic disorder known as butterfly skin.
The welcome home parade served as a celebration for the young boy who suffers from recessive dystrophic epidermolysis bullosa. The condition results in the skin being extremely fragile and prone to painful blistering, scarring, and destruction.
“He was missing skin on both of his feet, his hands, his chest,” Chandler Langford, Tucker’s mother, said. “So, any friction that he gets will cause an open wound.”
Tucker was sent home this week from Children’s Mercy Hospital on hospice care. The community organized the parade, knowing Tucker’s love for trucks and jeeps.
Tucker sat surrounded by family as the community put on the show designed specifically for him.
“When we were pulling, I was crying because seeing everyone supporting Tucker and our family means a lot to us,” Chandler Langford said…