The painful condition causes blistering, peeling skin that is as fragile as a butterfly’s wings
NEED TO KNOW
- Thousands of people in Kansas City, Mo., showed up to cheer up a child with a rare and incurable disease
- 3-year-old Tucker Langford suffers from a painful condition known as “butterfly skin,” which cause his skin to blister and peel, and he is now entering hospice care
- Tucker’s “favorite things” are trucks, Jeeps and motorcycles, and the community rallied together for a parade to help bring him some joy
Thousands of people showed up to bring joy to a 3-year-old Missouri boy with a rare and incurable disease.
Tucker Langford of Kansas City city suffers from recessive dystrophic epidermolysis bullosa (RDEB), a painful recessive condition which causes peeling, blistering skin, per local news outlets KSHB, KMBC and theKansas City Star. The condition is also known as “butterfly skin” because it makes the skin as fragile as a butterfly’s wings.
Tucker was recently released from Children’s Mercy Hospital in order to receive end-of-life hospice care at home, and his family decided to organize a parade to go by their house for Tucker to enjoy on Saturday, Oct. 11…