KANSAS CITY, Mo. (KCTV) – One resilient metro baby is thriving after a rare genetic disorder diagnosis.
5-month-old Rowen Larson has had quite the journey. Aria and Stephen, her parents, found out that they were carriers of the SMN1 gene before their first son, Silas’s, birth. This gene means there’s a chance for the carriers’ children to inherit a rare genetic condition.
Both of the Larson’s children, Silas and Rowen, were born with Spinal Muscular Atrophy due to this gene.
Rowen and her brother have both bravely battled the disorder, but one factor in Rowen’s case made her experience different: early intervention. Because of doctors’ prior knowledge of Rowen’s brother, Silas’s, condition, doctors began to formulate a treatment plan 7 weeks before Rowen was born…