In this project through Next Gen Radio — a collabartion between NPR and member stations — we highlight the experiences of people in the state of Florida. Thomas Ouellette speaks with Katie Seeright, a mother of two who faces challenges in her home every day. In addition to raising a toddler, Katie’s 6-year-old daughter Adeline suffers from an incredibly rare disease called Aicardi syndrome that prevents her from being able to take care of herself. Katie is ready at all times for when her daughter needs her. Through it all, the Seeright family does everything they can to make a home despite the challenges.