LINCOLN, Neb. (KOLN) — This weekend, hundreds of people gathered in Lincoln for a conference dealing with Batten Disease.
It’s rare, it’s always deadly — and there is still no cure — affecting only a handful of every 100,000 kids.
The Batten Disease Support, Research and Advocacy Foundation conference is a huge deal — the largest of its kind in the world — with families and clinicians from across the U.S. and around the globe…