Premature Babies Must Be Connected to Life-Changing Therapies Under New Illinois Law

Illinois hospital staff will soon be required by law to refer parents of severely premature infants to services that can help prevent years of intensive and expensive therapy later, when the children are older. The new law follows reporting from The Hechinger Report that exposed how hospitals often fail to connect many eligible parents to these opportunities for their children after they leave neonatal intensive care units.

Earlier this year, Hechinger contributor Sarah Carr wrote about how, across the country, far too few parents are made aware of the kinds of therapies their babies are entitled to under federal law. Such early intervention services can ultimately reduce the need for these children to require costly special education support as school children.

Carr noted: “Federal law says children with developmental delays, including newborns with significant likelihood of a delay, can get early intervention from birth to age 3. States design their own programs and set their own funding levels, however. They also set some of the criteria for which newborns are automatically eligible, typically relying on qualifying conditions like Down syndrome or cerebral palsy, extreme prematurity or low birthweight. Nationally, far fewer infants and toddlers receive the therapies than should. The stats are particularly bleak for babies under the age of 1: Just 1 percent of these infants get help. Yet an estimated 13 percent of infants and toddlers likely qualify.”…

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