Kansas adults and children with disabilities face years-long waitlists for Medicaid waivers

Kyley Hamill describes herself as a helicopter parent. She has to be; in addition to the normal — often risky — toddler behavior, her 2-year-old son, Archer, has a rare genetic disorder and is on the autism spectrum. His complex health issues mean he needs constant monitoring.

“He has, essentially, the cognitive function of a 14-month-old. So, whereas he’s a little bit over 2, he is nonverbal,” Hamill said.

Hamill said Archer experiences dystonic movements, which causes his muscles to contract involuntarily and makes him fall…

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