ROCKTON, Ill. (WIFR) – For Aaron and Krystle Myers, the signs something wasn’t right with their daughter Amelia didn’t come all at once.
What began as subtle changes turned into nearly two years of doctor visits and specialist appointments and eventually, a diagnosis they never expected.
Amelia Myers was diagnosed in May 2022 with metachromatic leukodystrophy, also known as MLD: a rare genetic disorder affecting the nervous system and progressively worsens over time. The disease damages the brain’s white matter, leading to loss of motor skills and cognitive function…