- Skylar Hubbard, 4, battles a rare disorder called beta-mannosidosis, known to affect only 50 people globally.
- Skylar recently underwent a bone marrow transplant at Primary Children’s Hospital to slow progression.
- Her family is working to raise $521,000 for enzyme therapy, potentially aiding rare disease treatment.
SALT LAKE CITY — Skylar Hubbard has been fighting since she was born prematurely. Placed into foster care as an infant, Skylar was officially adopted by the Hubbard family at age 2.
“Skylar has already defied the odds,” said Skylar’s mother, Erin Hubbard.
Now, at 4 years old, Skylar is once again proving she is a warrior. As she battles an ultra-rare metabolic disorder, her family is working to raise money for research to find effective treatments for rare disorders to help her and other children around the world…