CHICAGO (CBS) — Only on 2: A program that allows families to take care of loved ones with special needs and medically complex conditions, is expected to change in Indiana.
A mother in Lowell said the program has been a lifesaver and what’s being proposed would be life-changing.
Anna Dickerson and her husband Dave do a daily routine with their 18-month-old son, Miles: changing his trach tie.
“We have to make sure his neck stays dry and clean because a lot of moisture develops under the trach ties.”
Miles was born with Noonan Syndrome and cardiomyopathy, requiring a trach vent for his breathing.
“It is essentially his life support.”
Dickerson has been able to stay at home and care for Miles through Indiana’s Aged & Disabled Waiver Program .
It pays a parent or caregiver to be the main provider of care. Right now, Dickerson is paid $15 an hour, to care for Miles, 120 hours each week.
“It gives us the piece of mind that he is in the right hands at all times,” Dickerson said.