Brooke Eby has fully transitioned to fall – even if the Maryland weather hasn’t yet when we talk in late September. Sweatshirts, hot drinks, you name it.
It’s been a season of transitions for the 35-year-old who recently moved back in with her parents to her childhood home. But that change was born out of necessity. Eby has been living with ALS since March 2022, and it “got to the point where I just couldn’t do things by myself anymore,” she says. ALS is short for amyotrophic lateral sclerosis , a terminal neurodegenerative disease you might know as Lou Gehrig’s disease.
When you think of ALS, you think despair, decay, doom. But if you follow Eby on social media like TikTok and Instagram , you’re likely fighting off fits of laughter – whether she’s laughing at her caregiver Mimi or asking her inebriated friends what ALS stands for.
Eby is changing what the disease looks like and is teaching her followers what it means to live when you know your time of death is coming sooner than you’d hoped.