To most people, this place is the Ronald McDonald House Charities of Greater Delaware. For Madi Schiro, it’s “Donald’s House.”
“I feel like she runs the house sometimes when we’re here,” Anna Schiro, Madi’s mom, said with a laugh.
The 4-year-old big sister knows where almost everything is in the house. Her favorite spots are the playroom, multi-sensory room and the playground.
The Nevada family calls the Wilmington-based house home every three months — sometimes more.
“She has a rare form of skeletal dysplasia called Spondyloepimetaphyseal dysplasia with joint laxity type I,” Anna Schiro said. “Here specific gene b3 galt 6. There’s only 41 known people in the entire world who have ever been diagnosed with her gene.”
Madi’s team of doctors is across the way at Nemours Children’s Hospital, where she undergoes treatment.