Legaci was two months old when her mother noticed something strange — and frightening. Her eyes sometimes turned inward. Later, they began rolling upward and appeared to get stuck.
At first, Akron resident Destiny Moore, a first-time mother, thought the unusual movements were part of normal newborn development. But her concerns grew as episodes continued and Legaci struggled to reach milestones such as holding her head up.
Legaci’s pediatrician identified low muscle tone. An ophthalmologist (a physician who specializes in diagnosing and treating eye conditions) referred the family to a pediatric neurologist. Months of testing followed as specialists searched for answers…