Kimaya Soin was diagnosed with celiac disease at age 4, but it took some pushing from her mother.
“My doctors actually weren’t really going to check me for it, so it wasn’t on their radars,” Soin said. “My mom had to research my symptoms. She looked them up, and based on the symptoms I had, it was either likely celiac disease or leukemia, and she had never heard of celiac disease, like most people haven’t.”
Now 16 and a freshman at UW-Madison, Soin is channeling a lifetime of navigating the condition into advocacy, research and a May 16 fundraiser she hopes will raise $50,000 for celiac disease research…