The Muscular Dystrophy Association (MDA) brought its Engage Community Seminar to Hershey, Pennsylvania, on July 18, uniting individuals with neuromuscular diseases, caregivers, and medical experts for a day of education and connection.
Hosted in collaboration with the Penn State Health Milton S. Hershey Medical Center, the one-day event featured a variety of sessions to educate and empower people living with neuromuscular diseases, including muscular dystrophy, spinal muscular atrophy, amyotrophic lateral sclerosis, myasthenia gravis, and Pompe disease.
“Our hope is that families left with a better understanding of available resources, greater confidence in their care journey, and reassurance that they are part of a broader community working toward improved outcomes and greater independence for individuals living with neuromuscular diseases,” Marissa Lozano, MDA’s director of community education, said in a written interview with Bionews, the parent company of this site.
Connecting the community and local experts
With several events held throughout the year, the Engage program provides opportunities for the neuromuscular disease community, healthcare providers, and industry supporters to connect and learn. The goal is to educate people with neuromuscular diseases, provide guidance, support access to resources and information, and create opportunities for meaningful connections.
For these community seminars, the MDA partners with local health organizations. This time, it was the Penn State Medical Center, which operates a certified MDA Care Center…