The Brief
- The Stern family founded the RareDNA Foundation to raise awareness about PPA2 deficiency.
- There are only roughly 60 known cases of this ultra-rare mutation.
- The nonprofit has partnered with the University of Minnesota with plans to launch groundbreaking stem-cell research.
A family is turning a terrifying diagnosis into purpose.
The Stern family from Maple Grove is taking on a mission to help advance research for a rare genetic heart disease.
Ultra-rare mutation
The backstory:
Claire Stern and her mom, Sheila Stern, co-founded the RareDNA Foundation after Claire had gone from being a D-1 athlete to having to hang up her basketball shoes.…